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Our Community - Our Champions

STORIES THAT MOVE US

Our Step Up Champions are at the heart of this community. 
They are people who have chosen to stand up, speak up, and show up for those living with neurofibromatosis. Their stories are personal, powerful and real. They are helping to raise awareness, reduce isolation and remind others living with NF that they are not alone. 
This page is dedicated to celebrating our Step Up Champions and their stories, strength and the impact they are making across Australia.
Ready to share your story? Register and Step Up today.

OUR STEP UP CHAMPIONS

Felix's Story
Felix's Story

Felix was just 19 months old when he was diagnosed with NF1.

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Alex's Story
Alex's Story

Diagnosed with NF1 as a child, Alex has faced more than most — and continues to meet every challenge with strength and humour.

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Jennifer & Grayson's Story
Jennifer & Grayson's Story

Jennifer & Grayson's Story - Stepping Up Again

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Lily's Story
Lily's Story

Lily – Stepping Up for NF: Raising Awareness, Fighting Isolation

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Jess' Story
Jess' Story

Jessica – Stepping Up with Courage, Creativity and Determination

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Julia's Story
Julia's Story

Marathons, triathlons, cycling, fun runs. For Julia Szulerowski these provided more than just an active lifestyle; they provided her with a way to cope with NF.

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With you every step of the way

Email us at fundraising@ctf.org.au if there's something you're looking for that you can't find here. We'd love to help!